Wednesday, April 18, 2012


Hard to post in your blog about sewing projects when you have not stepped foot in your sewing room all week.  Not sure how many of you that read this are aware of it, but I have advanced lupus.  I actually originally had included it in my blog title because it is unfortunately a large part of my life and is actually the thing that brought me to sewing and quilting in a round about way.  However, when I started posting it came to me that I didn't want my blog to be about a person Lupus that quilted.  I wanted it to be about a quilter that just happen to have Lupus.  It is of course a part of my life but it isn't my LIFE.  It is only a small portion of it.  It has definitely made a large impact on it.  Shortened it I am sure.  But then many things could have done this as well.   My main goal is to try to keep it on the sidelines as much as I can.  There are times I am successful it doing that.  Others, not so much! Especially recently.Not sure if it is the Lupus that has been giving me so much hell lately of the Fibro.  It can be hard to make a distinction sometimes.   Then again, does it really matter which one the culprit is?  Don't really think so.

I try to use this time to research and find great patterns and tutorial.  Come up with plans to do things around the house... you know, that kind of stuff.  So that is what I have been doing.  I have been hoping to find some fabric that I can use to make some quilts to donate to some of the tornado victims.  Not any luck so far, but I still have some hope.  I never really know how long the down time will last but I try to wake up each day and do the body check.  I usually don't put much stock in how I feel in the morning.  Lets face it, as any Lupie can tell you, mornings are generally pretty crappy.  However, on a good day the crappiness is only temporary and will fade in an hour or two and you can get moving around.

Today is my youngest grand daughter's birthday.  She turned a whopping 1 years old today! My daughter brought her over for a visit.  I asked her to since the regular on the phone "happy birthday" just doesn't have the same wow factor for a 1 year old as it does say a 3 or 4 year old.  My daughter had some homework to do for a college class.  Mr. Nana was a sweetie and agreed to watch my grandbaby while my daughter used my laptop to do her homework.  They were playing and we could hear them both laughing up a storm.  Then we both noticed it had gotten really quiet.  I then bet my daughter that they were asleep, laying on the couch. I was HALF right.  She came running back to my room and grabbed her cell and got this adorable picture which I absolutely adore! Can't wait to frame it and get it hung!  But mostly it just shows how much Mr Nana adores our youngest grand daughter.

There he was, with our grand baby all snuggled up in his lap, wrapped in his favorite bathrobe.  Both of them sound asleep! Gotta love it!

Till next time, have a great day!



  1. First time in your lovely blogg :)
    Big hugs from decorating blogg SisustEllen from Finland ♥

  2. Awww.... what a precious picture! I hope and pray you are feeling better! I like what you said about not being a blogger Lupus that likes to quilt but that you are a quilter that happens to have Lupus! Good for you! I nominated you for the Versatile Blog Award!
    Check it out!


  3. Thank you so much! Both of you! You know how much comments mean to us new blogger! I cannot express how much really. It just feels nice to know someone out there is actually reading what we write huh?